One of the challenges with having scheduled surgery, is the natural
countdown of normal activities. Max wrapped a movie (Come Said the Night), played his last baseball for a bit, attended school until
March. And on and on…
As a parent, I watched each one tick away and circled in closer to Max as his days started becoming a bit scarier. The undiscussed
elephant in the room – is this giant wall of pain we know he has to endure. No way around, under or over. Believe me – we’ve searched. It’s time to keep leaning on each other and reminding ourselves that he will feel better in the long run.
Yesterday, at pre op I was so proud of him as he allowed NBC, CBS and People.com to cover his story. As a teenager, it’s not as natural to
live your life out loud. So glad he is willing to make a difference for other kids who face medical challenges.
Max’s faith in Jesus Christ is rock solid. It’s been beautiful to watch his baseball team, school community, church leaders, family and close friends bow their heads and stand with Max in prayer. The prayers help with the emotional struggle of this journey.
Personally, I am at the place where I can cry in an instant and can barely speak. As a family, we are hopeful and grateful. Our community of friends and family is steadfast and strong. Our trust is in Jesus to guide us through this trial. Our CHLA family is waiting to mend Max and send him home, with a new valve to continue living his incredible life.
We got this, Max!